Jackie Lodge

Chief executive, PWSA UK

Press coverage by month · bar height shows relative volume

Aug 2026Sept 2026Oct 2026Nov 2026to date

Quoted in the press, across 1 topic since 20 Aug 2026

02 Quoted on · 1 of 29 topics

Rare diseases

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Jackie Lodge: key facts

Kind of voice: Sector leader
Role: Chief executive, PWSA UK
Quoted on: Rare diseases
Press coverage: Quoted in the press
Most recently quoted: 20 Aug 2026

03 Profile

04 On the record · press

What Jackie Lodge has said

By outlet · bar length shows relative volume

caring-times.co.uk

Where Jackie Lodge has been quoted

Prader-Willi Syndrome residential service in Devon nears completion | Caring Timescaring-times.co.uk · 20 Aug 2026

How we found the articles that name Jackie Lodge: we searched news for these terms.

rare disease
rare conditions
orphan drugs
genetic disorder
cystic fibrosis
motor neurone disease
muscular dystrophy
Huntington

Also searched with “rare disease” in each of 8 national papers. Every term for Rare diseases

Verbatim

“There is now compelling evidence that living in specialist PWS services can significantly improve outcomes for adults with PWS; however, the availability of these services remains very limited.”

Chief executive, PWSA UK · Rare diseases · caring-times.co.uk · 20 Aug 2026 · Read the article

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Chief executives, directors and spokespeople of trade bodies, representative associations and charities speaking for the sector. Citations are counted by an automated scan of UK press coverage and may be incomplete. Roles, biographies and contact details are researched and human-reviewed before they appear here; anything not yet reviewed is simply absent rather than shown unverified. This profile was last updated on 11 Nov 2026. See the methodology for how this page is built, or email contact@bridgeheadcommunications.com to correct anything on it.