Nick MeadeSector leader
Chief Executive of Genetic Alliance UK
Cited in UK press coverage of health & social care
1 citation
Across 1 topic, first on 27 Aug 2026.
Expertise
Cited on
What they’ve said
“In the main, the NHS does an excellent job of looking after us when we need it, but this isn't true for everyone. In fact, for those of us living in the UK with a rare condition, it can be quite the reverse. Our healthcare model is made up of lots of different care pathways. If your symptoms fit neatly into one of these, then great. It means there will be a defined pathway of care for diagnosis and treatment. But these are rigid processes that tend to focus on the most common conditions.”
Chief Executive of Genetic Alliance UK · Hospital discharge / bed-blocking · 27 Aug 2026 · People with rare genetic conditions are ‘systematically ignored’ by NHS ↗
Source references
- People with rare genetic conditions are ‘systematically ignored’ by NHStheguardian.com · 27 Aug 2026
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