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01  Voice · Sector leader · Rare diseases

Sector leader

Jessica Lee

Director of Research, My Name'5 Doddie Foundation

Press coverage by month · bar height shows relative volume
Sept 2026Oct 2026Nov 2026to date
1

Quoted in the press, across 1 topic since 13 Sept 2026

EDINBURGH
OfficeMy Name'5 Doddie Foundation, Edinburgh, EH2 4BBMy Name'5 Doddie Foundation is based in Edinburgh North and Leith: the organisation’s base, not a personal address.

02  Quoted on · 1 of 29 topics

Open the topic

Jessica Lee: key facts

Kind of voice
Sector leader
Role
Director of Research
Organisation based in
Edinburgh North and Leith
Quoted on
Rare diseases
Press coverage
Quoted in the press
Most recently quoted
14 Sept 2026
First quoted
13 Sept 2026

03  Profile

Who Jessica Lee is

Jessica Lee is Director of Research at the My Name'5 Doddie Foundation, a UK charity that funds motor neurone disease (MND) research. The Foundation was set up by the late Scotland rugby player Doddie Weir.

Before joining, she worked in research and innovation roles across the government, charity and industry sectors. Her most recent previous role was Head of Patient Focused Partnerships at Medicines Discovery Catapult. She holds a BSc in Cell Biology and an MPhil in Molecular Cancer Science.

She is quoted in the press on the Foundation's research investment, including clinical trials funding and its five-year research strategy. She has said the strategy is intended to help accelerate the development of new MND treatments. She also chairs the Research Directors Forum of the International Alliance of ALS/MND Associations.

Notable achievements

  1. 01

    Chair of the Research Directors Forum of the International Alliance of ALS/MND Associations Source ↗

  2. 02

    Previously Head of Patient Focused Partnerships at Medicines Discovery Catapult, where her team set up international collaborations between patients, charities, pharma and biotech organisations Source ↗

  3. 03

    As Director of Research, was the Foundation's named spokesperson when it announced more than £500,000 of investment in MND clinical trials through its Clinical Research Infrastructure Awards Source ↗

  4. 04

    As Director of Research, was the Foundation's named spokesperson when it launched its five-year research strategy Source ↗

04  The signal · where Jessica Lee sits on rare diseases

Leading

One of the voices most often quoted in the press on rare diseases.

Placed by press coverage on this topic only, not across all topics.

  1. Giles LomaxSector leaderChief Executive Officer, Spinal Muscular Atrophy UK (SMA UK)Leading
  2. Dr Harrison CarterAcademicDirector of Screening at NHS EnglandLeading
  3. Dr Rich ScottSector leaderChief Executive Officer of Genomics EnglandLeading
  4. Tuomas Knowles portraitTuomas KnowlesAcademic1920 Professor of Physical Chemistry, University of CambridgeLeading
  5. Andy VaughtonClinicianFormer consultant anaesthetist (medically retired)Leading
  6. Jessica Lee portraitJessica LeeSector leaderDirector of Research, My Name'5 Doddie FoundationLeading
  7. Louise ParkesSector leaderChief executive, Great Ormond Street Hospital CharityLeading
  8. Prof Simon JonesAcademicco-leading the trial at Royal Manchester Children's HospitalLeading

Showing the leading voices and those placed around Jessica Lee · See every voice on the topic →

05  On the record · press

What Jessica Lee has said

By outlet · bar length shows relative volume
  • lbc.co.uk
  • news.stv.tv
  • scotsman.com
  • telegraph.co.uk

Where Jessica Lee has been quoted

  1. Dentists offered training to spot motor neurone diseasetelegraph.co.uk · 14 Sept 2026
  2. Dentists and GPs will be trained to spot early signs of MNDscotsman.com · 14 Sept 2026
  3. GPs and dentists offered training to spot motor neurone disease earlier, as campaigner warns 'you need time'lbc.co.uk · 14 Sept 2026
  4. Dentists and GPs offered training to spot early signs of motor neurone diseasenews.stv.tv · 13 Sept 2026

How we found the articles that name Jessica Lee: we searched news for these terms.

  • rare disease
  • rare conditions
  • orphan drugs
  • genetic disorder
  • cystic fibrosis
  • motor neurone disease
  • muscular dystrophy
  • Huntington

Also searched with “rare disease” in each of 8 national papers. Every term for Rare diseases

Verbatim

“MND is not common, its early signs can vary considerably and there is no single test that tells you conclusively that someone has it. That means people can move between different parts of the healthcare system before they reach the right specialist.”
director of research at the My Name'5 Doddie Foundation · Rare diseases · telegraph.co.uk · 14 Sept 2026 · Read the article
“MND is not common, its early signs can vary considerably and there is no single test that tells you conclusively that someone has it.”
Director of research, My Name'5 Doddie Foundation · Rare diseases · scotsman.com · 14 Sept 2026 · Read the article
“MND is not common; its early signs can vary considerably and there is no single test that tells you conclusively that someone has it. That means people can move between different parts of the healthcare system before they reach the right specialist.”
director of research at the My Name'5 Doddie Foundation · Rare diseases · lbc.co.uk · 14 Sept 2026 · Read the article
“MND is not common, its early signs can vary considerably and there is no single test that tells you conclusively that someone has it. That means people can move between different parts of the healthcare system before they reach the right specialist.”
director of research at the My Name'5 Doddie Foundation · Rare diseases · news.stv.tv · 13 Sept 2026 · Read the article

06  Sources

References for this biography

  1. Research Directors Forum – International Alliance of ALS/MND Associations. Her current title, her background (government, charity and industry roles, Medicines Discovery Catapult), her qualifications and her role as Chair of the Research Directors Forum.
  2. My Name'5 Doddie Foundation to invest £500,000 in trials. Press quotation identifying her as director of research, on the Foundation's clinical trials funding.
  3. Future MND cure 'possible' amid ambitious strategy by Doddie Weir's charity. Press quotation on the Foundation's five-year research strategy, and the Foundation's founding by Doddie Weir in 2017.
  4. Foundation makes half-million pound investment in new research to unravel the impact of DNA damage in MND. Foundation's own site quotes her as Director of Research on a research investment of about half a million pounds.
  5. Jessica Lee – My Name'5 Doddie Foundation (LinkedIn). LinkedIn profile that lists her at the Foundation and carries a Foundation post describing her as its Director of Research.
  6. Contact us – My Name'5 Doddie Foundation. Organisational press email and head-office address (1st Floor, 127 Rose Street South Lane, Edinburgh EH2 4BB).
  7. My Name'5 Doddie Foundation – OSCR Scottish Charity Register. Registered address and postcode (EH2 4BB), charity number SC047871 and the Foundation's website.

07  Contact & links

Organisational contact points only, each taken from a page the organisation publishes itself. No personal or direct contact details are held or shown.

Chief executives, directors and spokespeople of trade bodies, representative associations and charities speaking for the sector. Citations are counted by an automated scan of UK press coverage and may be incomplete. Roles, biographies and contact details are researched and human-reviewed before they appear here; anything not yet reviewed is simply absent rather than shown unverified. This profile was last updated on 12 Nov 2026. See the methodology for how this page is built, or email contact@bridgeheadcommunications.com to correct anything on it.