03 Profile
Hansard to 12 November 2026 · 31,484 contributions indexed · 1,439 MPs & peers
All voices01 Voice · Academic · Rare diseases
Prof Simon Jones
co-leading the trial at Royal Manchester Children's Hospital
Quoted in the press, across 2 topics since 24 Nov 2025
02 Quoted on · 2 of 29 topics
Prof Simon Jones: key facts
- Kind of voice
- Academic
- Role
- co-leading the trial at Royal Manchester Children's Hospital
- Quoted on
- Rare diseases, Cancer
- Press coverage
- Quoted in the press
- Most recently quoted
- 1 Nov 2026
- First quoted
- 24 Nov 2025
04 The signal · where Prof Simon Jones sits on rare diseases
Leading
One of the voices most often quoted in the press on rare diseases.
Placed by press coverage on this topic only, not across all topics.
- Giles LomaxSector leaderChief Executive Officer, Spinal Muscular Atrophy UK (SMA UK)Leading
- Dr Harrison CarterAcademicDirector of Screening at NHS EnglandLeading
- Dr Rich ScottSector leaderChief Executive Officer of Genomics EnglandLeading
Jessica LeeSector leaderDirector of Research, My Name'5 Doddie FoundationLeading- Louise ParkesSector leaderChief executive, Great Ormond Street Hospital CharityLeading
- Prof Simon JonesAcademicco-leading the trial at Royal Manchester Children's HospitalLeading
- Caroline JohnstonAcademicSenior Research Manager at Action Medical ResearchLeading
- Levi GarrawaySector leaderChief medical officer, RocheLeading
Showing the leading voices and those placed around Prof Simon Jones · See every voice on the topic →
05 On the record · press
What Prof Simon Jones has said
- aol.co.uk
- bbc.com
- express.co.uk
- technologynetworks.com
Where Prof Simon Jones has been quoted
- Heartbreak as parents told 'amazing' daughter, 3, has dementia - 'it was primal'express.co.uk · 1 Nov 2026
- Heartbreak as parents told 'amazing' daughter, 3, has dementia - 'the feeling was primal'aol.co.uk · 1 Nov 2026
- Inflammatory Genes Link Metabolic Disease and Pancreatic Cancertechnologynetworks.com · 7 May 2026
- Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapybbc.com · 24 Nov 2025
How we found the articles that name Prof Simon Jones: we searched news for these terms, by topic. Terms for 2 topics
Rare diseases
- rare disease
- rare conditions
- orphan drugs
- genetic disorder
- cystic fibrosis
- motor neurone disease
- muscular dystrophy
- Huntington
Also searched with “rare disease” in each of 8 national papers. Every term for Rare diseases
Cancer
- cancer
- cancer treatment
- cancer screening
- cancer waiting times
- oncology
- chemotherapy
- radiotherapy
- cancer diagnosis
Also searched with “cancer” in each of 8 national papers, and in the Guardian by editor tag, and in trade press by category. Every term for Cancer
Verbatim
“While childhood cancer survival rates have improved dramatically over the past 20 years, there has been no notable improvement for children with dementia”
“While childhood cancer survival rates have improved dramatically over the past 20 years, there has been no notable improvement for children with dementia. The disparity is stark - only seven FDA-approved drugs exist for childhood dementia compared to 51 for childhood cancer, and those seven drugs only help about 10% of diagnosed children.”
“This study highlights how chronic inflammation and metabolic dysfunction can intersect with cancer biology. Understanding these shared mechanisms is essential if we are to improve outcomes for patients who are living with multiple long‑term conditions alongside cancer.”
“I've been waiting 20 years to see a boy like Ollie doing as well as he is, and it's just so exciting.”
Related media coverage
Recent UK press coverage of their topics, not necessarily citing them directly.
Professors, researchers and think-tank analysts quoted on the strength of their research rather than a clinical role. Citations are counted by an automated scan of UK press coverage and may be incomplete. Roles, biographies and contact details are researched and human-reviewed before they appear here; anything not yet reviewed is simply absent rather than shown unverified. This profile was last updated on 13 Nov 2026. See the methodology for how this page is built, or email contact@bridgeheadcommunications.com to correct anything on it.