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01  Voice · Academic · Rare diseases

Prof Simon Jones: no photograph is held, so the academic plate is shown instead.
Academic

Prof Simon Jones

co-leading the trial at Royal Manchester Children's Hospital

Press coverage by month · bar height shows relative volume
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2

Quoted in the press, across 2 topics since 24 Nov 2025

02  Quoted on · 2 of 29 topics

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Prof Simon Jones: key facts

Kind of voice
Academic
Role
co-leading the trial at Royal Manchester Children's Hospital
Press coverage
Quoted in the press
Most recently quoted
1 Nov 2026
First quoted
24 Nov 2025

04  The signal · where Prof Simon Jones sits on rare diseases

Leading

One of the voices most often quoted in the press on rare diseases.

Placed by press coverage on this topic only, not across all topics.

  1. Giles LomaxSector leaderChief Executive Officer, Spinal Muscular Atrophy UK (SMA UK)Leading
  2. Dr Harrison CarterAcademicDirector of Screening at NHS EnglandLeading
  3. Dr Rich ScottSector leaderChief Executive Officer of Genomics EnglandLeading
  4. Jessica Lee portraitJessica LeeSector leaderDirector of Research, My Name'5 Doddie FoundationLeading
  5. Louise ParkesSector leaderChief executive, Great Ormond Street Hospital CharityLeading
  6. Prof Simon JonesAcademicco-leading the trial at Royal Manchester Children's HospitalLeading
  7. Caroline JohnstonAcademicSenior Research Manager at Action Medical ResearchLeading
  8. Levi GarrawaySector leaderChief medical officer, RocheLeading

Showing the leading voices and those placed around Prof Simon Jones · See every voice on the topic →

05  On the record · press

What Prof Simon Jones has said

By outlet · bar length shows relative volume
  • aol.co.uk
  • bbc.com
  • express.co.uk
  • technologynetworks.com

Where Prof Simon Jones has been quoted

  1. Heartbreak as parents told 'amazing' daughter, 3, has dementia - 'it was primal'express.co.uk · 1 Nov 2026
  2. Heartbreak as parents told 'amazing' daughter, 3, has dementia - 'the feeling was primal'aol.co.uk · 1 Nov 2026
  3. Inflammatory Genes Link Metabolic Disease and Pancreatic Cancertechnologynetworks.com · 7 May 2026
  4. Hunter syndrome: Boy with rare condition amazes doctors after world-first gene therapybbc.com · 24 Nov 2025
How we found the articles that name Prof Simon Jones: we searched news for these terms, by topic. Terms for 2 topics

Rare diseases

  • rare disease
  • rare conditions
  • orphan drugs
  • genetic disorder
  • cystic fibrosis
  • motor neurone disease
  • muscular dystrophy
  • Huntington

Also searched with “rare disease” in each of 8 national papers. Every term for Rare diseases

Cancer

  • cancer
  • cancer treatment
  • cancer screening
  • cancer waiting times
  • oncology
  • chemotherapy
  • radiotherapy
  • cancer diagnosis

Also searched with “cancer” in each of 8 national papers, and in the Guardian by editor tag, and in trade press by category. Every term for Cancer

Verbatim

“While childhood cancer survival rates have improved dramatically over the past 20 years, there has been no notable improvement for children with dementia”
Professor, consultant in paediatric inherited metabolic diseases at Manchester University NHS Foundation Trust · Rare diseases · express.co.uk · 1 Nov 2026 · Read the article
“While childhood cancer survival rates have improved dramatically over the past 20 years, there has been no notable improvement for children with dementia. The disparity is stark - only seven FDA-approved drugs exist for childhood dementia compared to 51 for childhood cancer, and those seven drugs only help about 10% of diagnosed children.”
Professor, consultant in paediatric inherited metabolic diseases at Manchester University NHS Foundation Trust · Rare diseases · aol.co.uk · 1 Nov 2026 · Read the article
“This study highlights how chronic inflammation and metabolic dysfunction can intersect with cancer biology. Understanding these shared mechanisms is essential if we are to improve outcomes for patients who are living with multiple long‑term conditions alongside cancer.”
Professor in Musculoskeletal Ageing, University of Birmingham; Theme Lead for the NIHR Biomedical Research Centre: Birmingham Sarcopenia and Multimorbidity research theme · Cancer · technologynetworks.com · 7 May 2026 · Read the article
“I've been waiting 20 years to see a boy like Ollie doing as well as he is, and it's just so exciting.”
co-leading the trial at Royal Manchester Children's Hospital · Rare diseases · bbc.com · 24 Nov 2025 · Read the article

Professors, researchers and think-tank analysts quoted on the strength of their research rather than a clinical role. Citations are counted by an automated scan of UK press coverage and may be incomplete. Roles, biographies and contact details are researched and human-reviewed before they appear here; anything not yet reviewed is simply absent rather than shown unverified. This profile was last updated on 13 Nov 2026. See the methodology for how this page is built, or email contact@bridgeheadcommunications.com to correct anything on it.